2008 Truth Commission Summary!

"I’m too sick to work now.  I’m on SSI, and I can’t afford to pay for medicines my doctor says I need. But somebody’s making money off my illnesses.  Lots of money . . . Do you know that (private medical companies) bill Medi-Medi $30,000 each and every month for my (kidney) dialysis?  Not every year, $30,000 every month!"

-Carolyn Milligan
2008 Oakland Truth Commission

 

TRAGIC VIOLATIONS OF HUMAN RIGHTS

One after another the horror stories spilled out, bringing tears to the eyes of the more than 100 people listening to each other’s tragic encounters with our broken health care system.  They were heard at the May 15, 2008, Truth Commission & Public Hearing on Health Care, hosted by the Women’s Economic Agenda Project (WEAP) at St. Mary’s Senior Center in Oakland.   At this third in a series of 2008 truth commissions held across the nation, the stories were about what happens when a health care system values profits before people.  After due deliberation, the Truth Commission members concluded that what had happened to the people who testified violated their human right to health care, as expressed in the United Nations Declaration of Human Rights, a document signed by the U.S. back in 1947.

The stories that were told happen everyday, everywhere, all around us.  But we don’t usually get to hear about them because the media isn’t interested in the everyday struggles of ordinary working people – no matter how heroic.  And the major political party candidates in the upcoming elections speak only in the most general terms about the need to change our health care system.  The candidates don’t focus on the millions of ordinary people who are forced into horrific situations because they don’t earn enough money to pay for the health care they need.  And for the most part, they don’t discuss the only "real" solution to this crisis: single payer universal health care.

BREAKING THE SILENCE

The Truth Commission in Oakland helped break the dangerous silence around how urgently we need a better health care system.  The 2008 effort was designed to reach a broader audience than WEAP’s 2006 Truth Commission, which relied on mainstream media news coverage to spread the word.  To see a video of highlights from the 2008 Truth Commission, click here (link coming soon).  Together, we worked at breaking the silence more broadly this time around by creating media accessible to more people.   You too can help break the silence where you live by learning about how poverty affects your life and why health care should be a human right.   Then spread the word about what you have learned, even if that means telling only one person a day about the opportunity we have right now to achieve universal health care. For tools to educate yourself and others, use the WEAP website, which includes a News & Notes section, a Health Care is a Human Right Toolkit, a Health Care Survey, and much more.  For an even more interactive learning experience, we invite you to attend one of our Health Care is a Human Right trainings.  Just e-mail weap@weap.org to schedule one.

THE HORROR STORIES POUR OUT

For more than three hours, members of the 2008 Truth Commission audience lined up at a microphone to tell their stories.  Most were just as tragic as the story of Carolyn Milligan, a hard working single mother whose diabetes spiraled unnecessarily and dangerously out of control because she lost her health insurance when she became sick.  This loss of health insurance caused Carolyn to lose her eyesight and her kidney function.  Now an organizer for single payer universal health care, Medicare shows her a bill for $30,000 a month that private insurance companies send the government for her dialysis.  Carolyn's story, like most throughout the day, illustrated the hidden truth that our society allows insurance corporations to make enormous profits off of people's illnesses, especially society's most vulnerable: the poor, low-income workers, women, the  elderly, youth, minorities, veterans, immigrants, the disabled, and countless others who fall through the widening gaps in our shredded social safety net.  

Jen Lee from Asian Health Services told about an uninsured elderly patient who qualified for MediCal (California’s Medicaid), but was having an incredibly difficult time getting approved even as he simultaneously struggled with a brain tumor.  After half a year of fighting without adequate medical care, he died the day before his MediCal application was finally approved.  Another woman told about how her husband’s pre-existing condition, arthritis, kept him from securing much-needed health insurance.  Many who were able to access care talked about its poor quality and out-of-control costs.  Others explained how the governor's budget cuts have severely hampered health care funding for low-income people in California.  When Britta Duncan, who traveled from Portland Oregon for the day, stepped up to the mike, she first talked about the shock of having doctors tell her to take her foster son home to die.  They refused to spend time or money on him because of his low-income status.  Yet, she credits her union with helping her fight for her son’s right to health care and that is the reason he is walking and talking today. Britta believes that only a single payer system that includes everyone can stop the unfair cruelty of our current privatized system.

A NURSE TELLS IT LIKE IT IS

Nancy Lewis, a family nurse practitioner was the keynote speaker.  As someone intimately involved everyday with our health care system, she was able to give the participants a personal and powerful look at the deeply broken condition of health care in the US.  She proclaimed, "What we have is not a health care system, but a health care industry, designed to make money off of us, the patients, without delivering adequate patient care."  She described how the low income clinic where she works continues to lose desperately needed funding, and how she often has to choose between turning away someone in dire need of medical attention or paying out of her own pocket to treat them. Being the type of heroine that she is, Nancy chooses the latter.  Most stirringly, Nancy ended her speech by displaying her Nurses Registration card to the crowd, urging, "I want you to look at this card that I am holding up.  It is not a credit card; it is my nursing license.  So let's get busy, we have a lot of work to do."   What Nancy was saying is that while she will gladly pay for a patient in need because our system has failed that patient, she did not become a nurse in order to worry and be held back by finances.  Her Nurses Registration card should never be synonymous with a credit card because this takes away from the care she is trained to give and this is exactly what our privatized system is asking of her: to put finances first and patients second.  Nancy, better than anyone, knows that we have a lot of work to do in order to gain a US health care system that includes efficiency, quality, affordability, and most importantly, dignity.

THINGS ARE GETTING WORSE, NOT BETTER

In 2008 the horror stories that people told remained as awful and inhumane as those heard during WEAP's first Truth Commission in 2006, a vivid confirmation of what studies show: U.S. health care is getting worse, not better.  This year WEAP included more information from people involved in national efforts to push for single-payer universal health care.  The audience heard from Healthcare NOW's National Coordinator Marilyn Clement about the status of the single payer national health insurance act HR 676.  Other speakers and performers included the Hip Hop Congress' Executive Director Shamoko Nobel and the Community Homeless Alliance Ministry's Adrienne Lawton.

WE KNOW THE SOLUTION

After a lunch appreciatively provided by St. Mary's Senior Center, WEAP conducted a brief but concise teach-in for those who wished to learn more about the health care crisis and the solution to it.  Dr. Sal Sandoval, a bilingual family practice physician who serves primarily farm workers and other rural poor, began by giving comments about the lack of quality and affordable health care available to his patients.  Even more frighteningly, he talked about how his patients are the ones mistakenly being blamed for our health care crisis, rather than the health insurance companies whose policies are the ones deciding who has enough “value” to “deserve” care.  Then a presentation by Standing to Represent our Next Generation (STRONG) and WEAP members based on WEAP's new "Health Care: A Human Right" pamphlet helped to further tease out the issues.  Of special interest was clarifying that the individual mandate solutions being pushed by many politicians is not true universal healthcare but really legislation that would subsidize health insurance companies and their profits even further.  For a copy of this pamphlet, click here.  

Ending the day was a superb presentation by Laura Turiano from the People's Health Movement.  She connected people’s health care human rights violations to the broader in more than one sense. First, she expanded our normal definition of health care to beyond just doctor visits, but asked us to think of health care as connected to other important social movements.  For example, the right to clean water or the right to clean air or the right to adequate housing are all factors that greatly affect people's health. Secondly, coming from an organization dealing with health care internationally, she was able to connect lessons abroad to the importance of needing a human rights framing domestically, an idea most have never even considered.  We invite you to do so now.  

 

 
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